What to keep and what to let go

What to keep and what to let go….
This afternoon I spent a little time in the disastrous “South Room” of our house.  Once upon a time it was a lovely room with wicker furniture and thriving plants.  Currently it is inhabited by piles of paperbacks, shelves of speech materials most ancient but some new, mountains of empty bins and containers, dresser drawers with notecards and paper, craft items in bags and boxes.  It’s hard to walk through there.  Scooting some boxes aside I made room to plop myself on the floor.  I emptied two boxes of papers which went into three piles.   To the recycler: Sure there is good stuff in there. Papers and articles presented by professional colleagues from around the country.  I was drawn to read them, to glean the information and use it in my practice. Oh, yeah, I don’t have a practice. Recycle.
To keep for awhile:  some of my best work or best lessons that I can’t draw myself to part with.  Not today, but soon they will go to the recycler.
To give: worksheets and articulation drill books and story mapping outlines and my unit on humor for the middle school kids. Am I fooling  myself? Will someone actually use this stuff?
As I sat there in the middle of 35 years of professional life I came to a decision about what else I will let go.  My licenses and certifications.  I am not going to renew.   Oregon Teaching License with Speech Impaired endorsement.  Oregon School Administrators  license.  Oregon Board of Examiners Speech Pathology License.  American Speech-Language and Hearing Association Certificate of Clinical Competence.  I am going to let them go.
My college classmate, professional colleague and dear friend, Dana Wood and I used to have long conversations about what we were going to be when we grew up.  I saw her a couple weeks at her retirement party.   ” We are now grown up” I said.  “What are we going to be?” Dana may be still pondering the question.  But I know.  Now that I am grown up I am going to be me.   Not the me that is defined by career or professional affiliations.  
I am going to be me.  Just Carol.  I am getting rid of everything else: The framed papers hanging on the wall that tell the world it’s ok to use my God given skills, the papers in the boxes and the books on the shelves. keeping me tho.  😉

Published by Carol Clupny, author The Ribbon of Road Ahead: One Woman's Remarkable Journey with Parkinson's Disease

I am a middle aged woman with Parkinson's Disease. When I was first diagnosed I spent a lot of time researching the disease. Seeing a video of a man in the advanced stages of the disease attempting to get out of his chair and then "freezing" as he tried to walk across the room got me off my butt and moving. Great adventures on the Camino de Santiago and with TEAM Pedaling for Parkinson's across IOWA, as well as the day to day adventures of life have lead me to writing. My first novel, a memoir, was published early 2019. It is called, you got it THE RIBBON OF ROAD AHEAD. Living with the degenerative neurological disease Parkinson's, ULTREIA is a word that guides me. I have chosen it as the name of my business ULTREIA BOOKS. It comes from Latin and old French and means "unfailing courage". In the old days, pilgrims would call "Ultreïa" to each other as encouragement "Go up, go further!" Nowadays we would say "You can do this thing". It takes courage to live with Parkinson's. May I face each day with unfailing courage. Ab Here is more about me; I was living an active lifestyle riding horses, hiking, climbing and snow skiing when at age fifty I was diagnosed with Parkinsons. Retiring from my career as a speech-language pathologist I decided to “take to the road” to battle the disease. My first steps, walking out her door to the mailbox, lead to trekking over 1000 miles of pilgrimage trails on the Camino de Santiago in France and Spain. A dusty bike discovered in the garage resulted in four rides on the Des Moines Register’s Annual Great Bike Ride Across Iowa with the Pedaling for Parkinsons Team. These adventures inspired me to write a memoir The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease. I blogs about my everyday life as a middle-aged woman in the mid-stages of Parkinson’s disease. My honest, humorous, and casual narrative style brings the reader to an intimate understanding of my resilience and acceptance. My blog, sharing the name of my book ”The Ribbon of Road Ahead” can be found at www.ultreiablog.org After completing a Masters of Science in Speech Pathology from Eastern Washington University I received certification in School Leadership and Administration from Lewis and Clark College. I provided speech pathology services and later became a program director completing 32 years in the wide geographic expanse of eastern Oregon. Active in the Oregon Speech-Language and Hearing Association I received honors of the association and the presidential award for work on recruitment and retention of speech and hearing professionals. Il presented numerous papers and projects at local, state and regional professional conferences. I was appointed by Governor Ted Kulongoski to two terms of the Oregon Board of Examiners of Speech Pathology and Audiology, the state’s licensing and consumer protection agency. Since my diagnosis in 2008, I has become active in the Parkinson’s community as an advocate, an Ambassador for the Davis Phinney Foundation and support group facilitator for Parkinson's Resources of Oregon. I was appointed the regional patient representative for the Parkinson's Foundation’s Women with PD TALK study. In September of 2019 the Michael J Fox Foundation selected me to participate in the Parkinson’s Policy Forum in Washington DC. As an attendee at the World Parkinson Congress in 2016 in Portand, Oregon, I presnted a poster session examining the decision making process for patients considering deep brain stimulation. At the 2019 WPC in Kyoto, Japan I presented a poster on vision concerns of women with PD and lead small group discussions. Myr book The Ribbon of Road Ahead has provided many speaking opportunities for Carol. In 2019 and early 2020 she visited 24 support groups in Washington, Idaho, Oregon and California to share her thoughts on living well with the disease. In addition, she has presented talks for The Center on Aging in San Francisco, Parkinson's Place in Las Vegas, Northwest Parkinson's Foundation in Richland WA and virtually through their HOPE online program. In late 2020 I rejuvenated her voice and narrated her book. It became available as an audio book in 2021. As part of this project I read stories over the airwaves on RadioParkies Australia with DJ Madonna and in Great Britain with DJ Johnny Parky. She and her husband Charlie have two adult sons. They live on a small hobby farm in eastern Oregon. Contact Information: Carol Clupny PO BOX 128, Hermiston, OR 97838 caclupny@gmail.com (541) 720-4256

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