Suggestion #2 How to hike on scree…zig zag

 As we look toward Mount Rainier we see the ash and scree on the summit of Mount Saint Helens.

Looking east to Mount Adams we are at the cornice of snow that hangs over the lip of the volcano.  Standing on the scree was a good thing because we knew there was earth under us.  The  snow was, well, just packed snow.  It could take us for a ride into the volcano if the conditions were right.

Reviewing the definition: Scree is the fine, crumbly crushed and eroded rock that slides underfoot, making it seem that the hiker is going up the down escalator. Often, each step up the mountain is accompanied by a corresponding slide down.

This definition of scree reminds me of the footing at the top of Mount Saint Helens. You follow a standard hiking route up Monitor Ridge. From about 4800 feet to near the rim of the volcano there are large poles  placed every so far apart  marking the route. (Actually there may have been wires attached at one time to gather data from the monitoring station at the top of the ridge, I will have to study that) It’s impossible to get lost if you don’t wander away from Monitor Ridge. But the footing gets tricky.  The scree on St. Helens becomes complicated by ash.  And unless you dare to climb when the slopes are still snow covered and frozen  you do the one step forward two steps back trick. 
Michael J Fox, currently the most famous person with PARKINSONS (as Pope John Paul II passed from this world in 2005) says that it’s that one foot forward that you should concentrate on the most. Makes sense especially when you are trying to get ahead of Parkinsons. Put the most effort going forward.  The sliding back is inevitable when attempting to gain elevation.  But that’s not where the effort is directed.

I made the summit of  Saint Helen’s twice. There are alot of things in my life I have done once, but then need to do again, and maybe even again.  Dr. Hiller please up  order one complete DBS surgery. I will visit the neurosurgeon again only when he has something better to offer  
Suggestion #2 for hiking on scree . When climbing on scree, look for a zigzag path and avoid facing the slope head on.
Heck no. I am not following this suggestion. I will never maintain or improve my mobility by zig zagging around.  Bring it on. I am following the protocol, like straight up Monitor Ridge to the scree and ash. One step forward. One step forward.  Working toward the day when the docs peek inside my brain..more boldly than when I tentatively stepped to the edge to look into the volcano. 

Published by Carol Clupny, author The Ribbon of Road Ahead: One Woman's Remarkable Journey with Parkinson's Disease

I am a middle aged woman with Parkinson's Disease. When I was first diagnosed I spent a lot of time researching the disease. Seeing a video of a man in the advanced stages of the disease attempting to get out of his chair and then "freezing" as he tried to walk across the room got me off my butt and moving. Great adventures on the Camino de Santiago and with TEAM Pedaling for Parkinson's across IOWA, as well as the day to day adventures of life have lead me to writing. My first novel, a memoir, was published early 2019. It is called, you got it THE RIBBON OF ROAD AHEAD. Living with the degenerative neurological disease Parkinson's, ULTREIA is a word that guides me. I have chosen it as the name of my business ULTREIA BOOKS. It comes from Latin and old French and means "unfailing courage". In the old days, pilgrims would call "Ultreïa" to each other as encouragement "Go up, go further!" Nowadays we would say "You can do this thing". It takes courage to live with Parkinson's. May I face each day with unfailing courage. Ab Here is more about me; I was living an active lifestyle riding horses, hiking, climbing and snow skiing when at age fifty I was diagnosed with Parkinsons. Retiring from my career as a speech-language pathologist I decided to “take to the road” to battle the disease. My first steps, walking out her door to the mailbox, lead to trekking over 1000 miles of pilgrimage trails on the Camino de Santiago in France and Spain. A dusty bike discovered in the garage resulted in four rides on the Des Moines Register’s Annual Great Bike Ride Across Iowa with the Pedaling for Parkinsons Team. These adventures inspired me to write a memoir The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease. I blogs about my everyday life as a middle-aged woman in the mid-stages of Parkinson’s disease. My honest, humorous, and casual narrative style brings the reader to an intimate understanding of my resilience and acceptance. My blog, sharing the name of my book ”The Ribbon of Road Ahead” can be found at www.ultreiablog.org After completing a Masters of Science in Speech Pathology from Eastern Washington University I received certification in School Leadership and Administration from Lewis and Clark College. I provided speech pathology services and later became a program director completing 32 years in the wide geographic expanse of eastern Oregon. Active in the Oregon Speech-Language and Hearing Association I received honors of the association and the presidential award for work on recruitment and retention of speech and hearing professionals. Il presented numerous papers and projects at local, state and regional professional conferences. I was appointed by Governor Ted Kulongoski to two terms of the Oregon Board of Examiners of Speech Pathology and Audiology, the state’s licensing and consumer protection agency. Since my diagnosis in 2008, I has become active in the Parkinson’s community as an advocate, an Ambassador for the Davis Phinney Foundation and support group facilitator for Parkinson's Resources of Oregon. I was appointed the regional patient representative for the Parkinson's Foundation’s Women with PD TALK study. In September of 2019 the Michael J Fox Foundation selected me to participate in the Parkinson’s Policy Forum in Washington DC. As an attendee at the World Parkinson Congress in 2016 in Portand, Oregon, I presnted a poster session examining the decision making process for patients considering deep brain stimulation. At the 2019 WPC in Kyoto, Japan I presented a poster on vision concerns of women with PD and lead small group discussions. Myr book The Ribbon of Road Ahead has provided many speaking opportunities for Carol. In 2019 and early 2020 she visited 24 support groups in Washington, Idaho, Oregon and California to share her thoughts on living well with the disease. In addition, she has presented talks for The Center on Aging in San Francisco, Parkinson's Place in Las Vegas, Northwest Parkinson's Foundation in Richland WA and virtually through their HOPE online program. In late 2020 I rejuvenated her voice and narrated her book. It became available as an audio book in 2021. As part of this project I read stories over the airwaves on RadioParkies Australia with DJ Madonna and in Great Britain with DJ Johnny Parky. She and her husband Charlie have two adult sons. They live on a small hobby farm in eastern Oregon. Contact Information: Carol Clupny PO BOX 128, Hermiston, OR 97838 caclupny@gmail.com (541) 720-4256

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