I follow the recipe

I cooked yesterday.  It has been a little while since I have cooked anything. Well of course I have made eggs and salads and sandwiches  and tacos and soup and steaks that don’t require a recipe. It’s hard for me to follow recipes … I am not sure why.  Because I’m blonde. Not! Maybe it’s because I tend to put the cookbook on the table and the ingredients on the counter.  I look at the directions and by the time I have turned to the counter I have forgotten what the ingredients are, where to put them, what comes next, how much, what temperature. So I turn back, look at the cookbook and guess what? The same thing happens. Where has my memory for detail gone?


I told my doctor about this recipe phenomenon.  This highly trained movement disorder specialist neurologist who is at least 20 years younger and has ten more years of school than I  suddenly becomes my freshman Home Economics class teacher.  Her white lab coat turns into an apron right before my eyes. The exam table is the counter and the computer is really a cookbook on a stand. Tongue depressors are utensils and the blood pressure cuff,  hmm, the hand held mixer? By golly is this a hallucination, my imagination or just too much Sinemet?
She says:
Place  your cookbook near your work area.  Check for your ingredients and gather everything before you start.  Get out the measuring spoons and cups, mixing bowls and anything else you may need.  Check the recipe book for the oven temperature and set it.  Now follow the directions one step at a time. Be sure to add ingredients in the order they are listed…and on goes the cooking lecture…

 I paid  $250 for 20 minute visit about following recipes?

Dr Amie, I wanted to say.  I have been cooking for years. I was quite good in Home Ec. I even won the Betty Crocker Homemaker award. Mind you that was a paper and pencil test and the judges weren’t there to actually see me cook. They didn’t hear about the great saltwater taffy debacle which someone photographed and memorialized  in the high school annual. Lucky for them they weren’t present when I didn’t get the beaters in quite right on the mixer.  Bad thing about that, when I cleaned up the mess and  I started over,  I still hadn’t placed the beaters in the mixer properly.  Ugh.  But I could out cook anyone (except maybe my mom) at the hamburger grill and a was super speedy at milkshake mixing.  Does that lower my points on the Parkinson’s severity rating scale.  

I didn’t say any of that to Dr Amie. Yesterday I followed her advice and the recipe didn’t take 3 hours more than usual to make.  
It’s nice to have a recipe to follow.  If you do things a certain way you can expect certain results. If you do not follow the recipe you get certain other results. So, my Parkinson’s recipe for success is as follows: check your internal temperature. If it’s somewhere near 98.6 you are good. Next is your heart beating?  You can move then. get moving. Get up to or exceed 8 hours of sleep in 24, no matter how. Take the medication at exactly the right time. Watch what you eat, drink plenty of water, stretch, walk, ride a bike, work out.  Gather friends for support and fun. These things are my recipe for success,  I can do this thing called Parkinson’s. 

Published by Carol Clupny, author The Ribbon of Road Ahead: One Woman's Remarkable Journey with Parkinson's Disease

I am a middle aged woman with Parkinson's Disease. When I was first diagnosed I spent a lot of time researching the disease. Seeing a video of a man in the advanced stages of the disease attempting to get out of his chair and then "freezing" as he tried to walk across the room got me off my butt and moving. Great adventures on the Camino de Santiago and with TEAM Pedaling for Parkinson's across IOWA, as well as the day to day adventures of life have lead me to writing. My first novel, a memoir, was published early 2019. It is called, you got it THE RIBBON OF ROAD AHEAD. Living with the degenerative neurological disease Parkinson's, ULTREIA is a word that guides me. I have chosen it as the name of my business ULTREIA BOOKS. It comes from Latin and old French and means "unfailing courage". In the old days, pilgrims would call "Ultreïa" to each other as encouragement "Go up, go further!" Nowadays we would say "You can do this thing". It takes courage to live with Parkinson's. May I face each day with unfailing courage. Ab Here is more about me; I was living an active lifestyle riding horses, hiking, climbing and snow skiing when at age fifty I was diagnosed with Parkinsons. Retiring from my career as a speech-language pathologist I decided to “take to the road” to battle the disease. My first steps, walking out her door to the mailbox, lead to trekking over 1000 miles of pilgrimage trails on the Camino de Santiago in France and Spain. A dusty bike discovered in the garage resulted in four rides on the Des Moines Register’s Annual Great Bike Ride Across Iowa with the Pedaling for Parkinsons Team. These adventures inspired me to write a memoir The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease. I blogs about my everyday life as a middle-aged woman in the mid-stages of Parkinson’s disease. My honest, humorous, and casual narrative style brings the reader to an intimate understanding of my resilience and acceptance. My blog, sharing the name of my book ”The Ribbon of Road Ahead” can be found at www.ultreiablog.org After completing a Masters of Science in Speech Pathology from Eastern Washington University I received certification in School Leadership and Administration from Lewis and Clark College. I provided speech pathology services and later became a program director completing 32 years in the wide geographic expanse of eastern Oregon. Active in the Oregon Speech-Language and Hearing Association I received honors of the association and the presidential award for work on recruitment and retention of speech and hearing professionals. Il presented numerous papers and projects at local, state and regional professional conferences. I was appointed by Governor Ted Kulongoski to two terms of the Oregon Board of Examiners of Speech Pathology and Audiology, the state’s licensing and consumer protection agency. Since my diagnosis in 2008, I has become active in the Parkinson’s community as an advocate, an Ambassador for the Davis Phinney Foundation and support group facilitator for Parkinson's Resources of Oregon. I was appointed the regional patient representative for the Parkinson's Foundation’s Women with PD TALK study. In September of 2019 the Michael J Fox Foundation selected me to participate in the Parkinson’s Policy Forum in Washington DC. As an attendee at the World Parkinson Congress in 2016 in Portand, Oregon, I presnted a poster session examining the decision making process for patients considering deep brain stimulation. At the 2019 WPC in Kyoto, Japan I presented a poster on vision concerns of women with PD and lead small group discussions. Myr book The Ribbon of Road Ahead has provided many speaking opportunities for Carol. In 2019 and early 2020 she visited 24 support groups in Washington, Idaho, Oregon and California to share her thoughts on living well with the disease. In addition, she has presented talks for The Center on Aging in San Francisco, Parkinson's Place in Las Vegas, Northwest Parkinson's Foundation in Richland WA and virtually through their HOPE online program. In late 2020 I rejuvenated her voice and narrated her book. It became available as an audio book in 2021. As part of this project I read stories over the airwaves on RadioParkies Australia with DJ Madonna and in Great Britain with DJ Johnny Parky. She and her husband Charlie have two adult sons. They live on a small hobby farm in eastern Oregon. Contact Information: Carol Clupny PO BOX 128, Hermiston, OR 97838 caclupny@gmail.com (541) 720-4256

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