March 7 facebook postt

These days continue to fly. I woke up to the light just breaking the horizon. Before the chime of 6 am. I am proud to say I did my spine strengthening exercises, stretches for that darn sciatica and stretched those tight hamstrings. Some morning meds were delivered by the ever vigilant and loving care partner Charles and I went back to sleep. Oh sleep, you are the best part of the day.
Visiting a dear friend recovery from knee surgery, checking on my kid who brought friends home for lunch. Lions club lunch. Home to change clothes before physical therapy. And there, at home in my very own garage, in my own car and in the back seat …that’s where the fun began.

Do you remember when Pooh entered Rabbit’s house and ate a bit much and was not able to get back out through the rabbit hole he entered?? I found myself stuck in my car today, and I laughed to think how much I looked like Pooh. I did not get into the back seat to retrieve food, but to get my phone which fell between the seats and into its favorite hiding place. I was in the garage and had parked a little close on the passengers side. But you know I can slip right in the back passenger side door that only will open about a third of the way due to the proximity of the next vehicle…. I am 20 years old and weigh 105 lbs, right? WRONG!. Since I was truly stuck, and could not reach my phone, or the car horn …I was stuck stuck. So what was I to do. #1 on the problem solving scale. Identify the problem. Well, yeah I know the problem… I am stuck and there is no one here to help. #2 what are the possible solutions. Um, relax and take a nap. Somehow get my boots off and try to wiggle out again. hmm just think skinny #4 try one of your solutions. I did, I thought skinny and I shimmied my way out! #5 review what you will do different next time to not get into that situation. Well duh.
So the day isn’t over yet, and I am not anticipating getting stuck anywhere else. But check back later, I might find myself in yet another situation to entertain you, and me, on this countdown 21 days to DBS.

Carol Clupny's photo.

Published by Carol Clupny, author The Ribbon of Road Ahead: One Woman's Remarkable Journey with Parkinson's Disease

I am a middle aged woman with Parkinson's Disease. When I was first diagnosed I spent a lot of time researching the disease. Seeing a video of a man in the advanced stages of the disease attempting to get out of his chair and then "freezing" as he tried to walk across the room got me off my butt and moving. Great adventures on the Camino de Santiago and with TEAM Pedaling for Parkinson's across IOWA, as well as the day to day adventures of life have lead me to writing. My first novel, a memoir, was published early 2019. It is called, you got it THE RIBBON OF ROAD AHEAD. Living with the degenerative neurological disease Parkinson's, ULTREIA is a word that guides me. I have chosen it as the name of my business ULTREIA BOOKS. It comes from Latin and old French and means "unfailing courage". In the old days, pilgrims would call "Ultreïa" to each other as encouragement "Go up, go further!" Nowadays we would say "You can do this thing". It takes courage to live with Parkinson's. May I face each day with unfailing courage. Ab Here is more about me; I was living an active lifestyle riding horses, hiking, climbing and snow skiing when at age fifty I was diagnosed with Parkinsons. Retiring from my career as a speech-language pathologist I decided to “take to the road” to battle the disease. My first steps, walking out her door to the mailbox, lead to trekking over 1000 miles of pilgrimage trails on the Camino de Santiago in France and Spain. A dusty bike discovered in the garage resulted in four rides on the Des Moines Register’s Annual Great Bike Ride Across Iowa with the Pedaling for Parkinsons Team. These adventures inspired me to write a memoir The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease. I blogs about my everyday life as a middle-aged woman in the mid-stages of Parkinson’s disease. My honest, humorous, and casual narrative style brings the reader to an intimate understanding of my resilience and acceptance. My blog, sharing the name of my book ”The Ribbon of Road Ahead” can be found at www.ultreiablog.org After completing a Masters of Science in Speech Pathology from Eastern Washington University I received certification in School Leadership and Administration from Lewis and Clark College. I provided speech pathology services and later became a program director completing 32 years in the wide geographic expanse of eastern Oregon. Active in the Oregon Speech-Language and Hearing Association I received honors of the association and the presidential award for work on recruitment and retention of speech and hearing professionals. Il presented numerous papers and projects at local, state and regional professional conferences. I was appointed by Governor Ted Kulongoski to two terms of the Oregon Board of Examiners of Speech Pathology and Audiology, the state’s licensing and consumer protection agency. Since my diagnosis in 2008, I has become active in the Parkinson’s community as an advocate, an Ambassador for the Davis Phinney Foundation and support group facilitator for Parkinson's Resources of Oregon. I was appointed the regional patient representative for the Parkinson's Foundation’s Women with PD TALK study. In September of 2019 the Michael J Fox Foundation selected me to participate in the Parkinson’s Policy Forum in Washington DC. As an attendee at the World Parkinson Congress in 2016 in Portand, Oregon, I presnted a poster session examining the decision making process for patients considering deep brain stimulation. At the 2019 WPC in Kyoto, Japan I presented a poster on vision concerns of women with PD and lead small group discussions. Myr book The Ribbon of Road Ahead has provided many speaking opportunities for Carol. In 2019 and early 2020 she visited 24 support groups in Washington, Idaho, Oregon and California to share her thoughts on living well with the disease. In addition, she has presented talks for The Center on Aging in San Francisco, Parkinson's Place in Las Vegas, Northwest Parkinson's Foundation in Richland WA and virtually through their HOPE online program. In late 2020 I rejuvenated her voice and narrated her book. It became available as an audio book in 2021. As part of this project I read stories over the airwaves on RadioParkies Australia with DJ Madonna and in Great Britain with DJ Johnny Parky. She and her husband Charlie have two adult sons. They live on a small hobby farm in eastern Oregon. Contact Information: Carol Clupny PO BOX 128, Hermiston, OR 97838 caclupny@gmail.com (541) 720-4256

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