Jesus is their Passion

I wrote this over a year ago.I came across it while looking for a another document and thought it worth reposting.

Jesus is their passion

March 29, 2018 ·

Charlie has been visiting the prison for a Saturday morning bible study for almost 18 years. The men come and go, but the small group of religious volunteers from the Catholic Church have been steadfast in opening scriptures for the prisoners there. They invited Charlie and I to come to the Wednesday night Mass so they could pray for us as we prepare to leave. Charlie is a regular visitor and has a badge but I had to get clearance and then go through security. It was a minor inconvenience to the special evening I was about to experience. Some of you may have read my short story “Wednesday night at the Prison” written almost exactly two years ago when I attended Mass there just prior to my brain procedure for Parkinson’s disease. This Mass was no less special. First the singing is amazing. Fr Daniel Maxwell, the presider, commented on the robust song lyrics brought off the page of the St Michaels Hymnal by the masculine voices. After the reading of the Passion, Fr. Maxwell summarized what it means to have passion in your life. It is to love in such a way that you make unbelievable sacrifices, as Jesus did when he was handed over be crucified. Reflecting on this reading, which I know I have heard at least 60 times and always gain more understanding, I thought about how much love it takes to love someone enough to lay down your life for them. In the Catholic Church Jesus is still hanging on the cross. He didn’t die for us and then we remember his death by a neat and tidy cross. The gruesome passion he suffered is there as a reminder He is still with us IN OUR MESSY AND OFTEN GRUESOME LIVES, ready to forgive our sins no matter how bad they are. He hasn’t left us, although we may leave him. He will welcome us back if we only ask.
Warm handshakes, smiles and good wishes were exchanged as the inmates left the chapel and returned to their cells. We went another direction, out into the cool night air. Laughing and joking as we walked to our cars. We are free. Many of the men we met tonight, although living behind these walls and wires are also free.They have reclaimed Jesus and made Him their Passion.

Published by Carol Clupny, author The Ribbon of Road Ahead: One Woman's Remarkable Journey with Parkinson's Disease

I am a middle aged woman with Parkinson's Disease. When I was first diagnosed I spent a lot of time researching the disease. Seeing a video of a man in the advanced stages of the disease attempting to get out of his chair and then "freezing" as he tried to walk across the room got me off my butt and moving. Great adventures on the Camino de Santiago and with TEAM Pedaling for Parkinson's across IOWA, as well as the day to day adventures of life have lead me to writing. My first novel, a memoir, was published early 2019. It is called, you got it THE RIBBON OF ROAD AHEAD. Living with the degenerative neurological disease Parkinson's, ULTREIA is a word that guides me. I have chosen it as the name of my business ULTREIA BOOKS. It comes from Latin and old French and means "unfailing courage". In the old days, pilgrims would call "Ultreïa" to each other as encouragement "Go up, go further!" Nowadays we would say "You can do this thing". It takes courage to live with Parkinson's. May I face each day with unfailing courage. Ab Here is more about me; I was living an active lifestyle riding horses, hiking, climbing and snow skiing when at age fifty I was diagnosed with Parkinsons. Retiring from my career as a speech-language pathologist I decided to “take to the road” to battle the disease. My first steps, walking out her door to the mailbox, lead to trekking over 1000 miles of pilgrimage trails on the Camino de Santiago in France and Spain. A dusty bike discovered in the garage resulted in four rides on the Des Moines Register’s Annual Great Bike Ride Across Iowa with the Pedaling for Parkinsons Team. These adventures inspired me to write a memoir The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease. I blogs about my everyday life as a middle-aged woman in the mid-stages of Parkinson’s disease. My honest, humorous, and casual narrative style brings the reader to an intimate understanding of my resilience and acceptance. My blog, sharing the name of my book ”The Ribbon of Road Ahead” can be found at After completing a Masters of Science in Speech Pathology from Eastern Washington University I received certification in School Leadership and Administration from Lewis and Clark College. I provided speech pathology services and later became a program director completing 32 years in the wide geographic expanse of eastern Oregon. Active in the Oregon Speech-Language and Hearing Association I received honors of the association and the presidential award for work on recruitment and retention of speech and hearing professionals. Il presented numerous papers and projects at local, state and regional professional conferences. I was appointed by Governor Ted Kulongoski to two terms of the Oregon Board of Examiners of Speech Pathology and Audiology, the state’s licensing and consumer protection agency. Since my diagnosis in 2008, I has become active in the Parkinson’s community as an advocate, an Ambassador for the Davis Phinney Foundation and support group facilitator for Parkinson's Resources of Oregon. I was appointed the regional patient representative for the Parkinson's Foundation’s Women with PD TALK study. In September of 2019 the Michael J Fox Foundation selected me to participate in the Parkinson’s Policy Forum in Washington DC. As an attendee at the World Parkinson Congress in 2016 in Portand, Oregon, I presnted a poster session examining the decision making process for patients considering deep brain stimulation. At the 2019 WPC in Kyoto, Japan I presented a poster on vision concerns of women with PD and lead small group discussions. Myr book The Ribbon of Road Ahead has provided many speaking opportunities for Carol. In 2019 and early 2020 she visited 24 support groups in Washington, Idaho, Oregon and California to share her thoughts on living well with the disease. In addition, she has presented talks for The Center on Aging in San Francisco, Parkinson's Place in Las Vegas, Northwest Parkinson's Foundation in Richland WA and virtually through their HOPE online program. In late 2020 I rejuvenated her voice and narrated her book. It became available as an audio book in 2021. As part of this project I read stories over the airwaves on RadioParkies Australia with DJ Madonna and in Great Britain with DJ Johnny Parky. She and her husband Charlie have two adult sons. They live on a small hobby farm in eastern Oregon. Contact Information: Carol Clupny PO BOX 128, Hermiston, OR 97838 (541) 720-4256

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