Social Media according to NetFlix


I used to bring electronics in bed to help me stay awake. I was afraid to sleep.  Wild dreams, the kind where you live them over and again, possessed me for days after.

And now, when the electronics come to bed with me, I turn them on and instantly fall asleep.  Falling asleep is good, but the “instantly” can cause issues.  In my subconscious I am awake and interacting with people.  One night I woke up for a ritual bathroom break and looked at FB messenger to see I had an interaction with a friend that ended with a bunch of unconnected words from me. Her comment was “having some trouble sleeping tonight?” Another morning at 4 am I heard my Facebook messenger audio call ringing. Oh my goodness, I had called someone. I looked at the name and flipped out. This someone would not be calling me, and would not appreciate a call from me at this ungodly hour, if at all.

Do you remember when email was a big deal?  How about instant messaging?

In 1996 the young internet welcomed a new communication tool developed in Israel.  ICQ, short for I seek you, showed great promise in allowing individual and personal  text messaging to zig zag around the globe. Within 10 years the company was sold for nearly $500 million dollars. Big time discovery!

Come forward to now.

Social media Facebook, Myspace, tic toc, You Tube, Instagram, Snapchat, Twitter, have apparently taken over the need for face to face interaction.

A recently released Netflix docu-movie THE SOCIAL DILEMA suggests social media can be creepy and addictive. Some of us may already be aware of that.  Others may be in shock over it. Devika Girish’s review “Unplug and Run” in The New York Times September 9th edition reveals to the unaware: the constant scrolling and push notifications engage the viewer in advertisements and propagandas that eventually take over and control behavior.  Developers of several different social media platforms give interviews in the film. Most noted at first they thought they were doing great things.  Yet later they admitted being lured by money.  And now they are concerned about the breakdown in viewers’ mental health and the influences on democracy.  One particular statement got to me” Russia didn’t hack Facebook.  They just used the platform”. How easy was that?

The film highlights a family where no one interacts at the dinner table.  The teenage girl worries about her online appearance and plays through many scenarios until what she finally posts bears little resemblance to her sweet face.  The young brother is lured from his on screen activity into a demonstration in town where both he and his sister who follows him become innocent victims to police actions.

The developers come back near the end of the film to say “all is not lost”.  Some comment they don’t allow their own children to use social media, that they keep use of electronics in their homes under strict control. There isn’t much else offered in the program in the way of suggestions to keep people out of danger, perceived or otherwise.

I thought about my own use of social media.  It has been a connection for me with people around the world.  Of the over 1000 Facebook followers, I suspect75% have been diagnosed with Parkinson’s disease.  In this time of pandemic, we people with Parkinson’s are particularly lonely.    Social isolation brings out symptoms as much as lack of exercise or undermedication.   We can reach out to others on our phones, yes. But the connection via social media is often easier, reaches more people, gets us more feedback ….  And I scroll and scroll.


What shall I do then?

I am not going to “Unplug and Run”.  Personally, the seclusion would be hard on me.

Here is what I think will help, at least me, to continue using social media safely.

Assign a time and place to check my posts and stick to it. For example, 7-9 pm on the office computer.    Or Sunday afternoons from 2-5.

Make pleasant posts that are accurate information.

Check out the facts before forwarding anything, better yet,  don’t forward anything.

Don’t respond to inflammatory comments, scroll right past them.

Close out advertisements.

If purchasing on line, leave the social media site and purchase incognito.


This is a problem that deserves further conversation.  What are your thoughts?

Published by Carol Clupny, author The Ribbon of Road Ahead: One Woman's Remarkable Journey with Parkinson's Disease

I am a middle aged woman with Parkinson's Disease. When I was first diagnosed I spent a lot of time researching the disease. Seeing a video of a man in the advanced stages of the disease attempting to get out of his chair and then "freezing" as he tried to walk across the room got me off my butt and moving. Great adventures on the Camino de Santiago and with TEAM Pedaling for Parkinson's across IOWA, as well as the day to day adventures of life have lead me to writing. My first novel, a memoir, was published early 2019. It is called, you got it THE RIBBON OF ROAD AHEAD. Living with the degenerative neurological disease Parkinson's, ULTREIA is a word that guides me. I have chosen it as the name of my business ULTREIA BOOKS. It comes from Latin and old French and means "unfailing courage". In the old days, pilgrims would call "Ultreïa" to each other as encouragement "Go up, go further!" Nowadays we would say "You can do this thing". It takes courage to live with Parkinson's. May I face each day with unfailing courage. Ab Here is more about me; I was living an active lifestyle riding horses, hiking, climbing and snow skiing when at age fifty I was diagnosed with Parkinsons. Retiring from my career as a speech-language pathologist I decided to “take to the road” to battle the disease. My first steps, walking out her door to the mailbox, lead to trekking over 1000 miles of pilgrimage trails on the Camino de Santiago in France and Spain. A dusty bike discovered in the garage resulted in four rides on the Des Moines Register’s Annual Great Bike Ride Across Iowa with the Pedaling for Parkinsons Team. These adventures inspired me to write a memoir The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease. I blogs about my everyday life as a middle-aged woman in the mid-stages of Parkinson’s disease. My honest, humorous, and casual narrative style brings the reader to an intimate understanding of my resilience and acceptance. My blog, sharing the name of my book ”The Ribbon of Road Ahead” can be found at After completing a Masters of Science in Speech Pathology from Eastern Washington University I received certification in School Leadership and Administration from Lewis and Clark College. I provided speech pathology services and later became a program director completing 32 years in the wide geographic expanse of eastern Oregon. Active in the Oregon Speech-Language and Hearing Association I received honors of the association and the presidential award for work on recruitment and retention of speech and hearing professionals. Il presented numerous papers and projects at local, state and regional professional conferences. I was appointed by Governor Ted Kulongoski to two terms of the Oregon Board of Examiners of Speech Pathology and Audiology, the state’s licensing and consumer protection agency. Since my diagnosis in 2008, I has become active in the Parkinson’s community as an advocate, an Ambassador for the Davis Phinney Foundation and support group facilitator for Parkinson's Resources of Oregon. I was appointed the regional patient representative for the Parkinson's Foundation’s Women with PD TALK study. In September of 2019 the Michael J Fox Foundation selected me to participate in the Parkinson’s Policy Forum in Washington DC. As an attendee at the World Parkinson Congress in 2016 in Portand, Oregon, I presnted a poster session examining the decision making process for patients considering deep brain stimulation. At the 2019 WPC in Kyoto, Japan I presented a poster on vision concerns of women with PD and lead small group discussions. Myr book The Ribbon of Road Ahead has provided many speaking opportunities for Carol. In 2019 and early 2020 she visited 24 support groups in Washington, Idaho, Oregon and California to share her thoughts on living well with the disease. In addition, she has presented talks for The Center on Aging in San Francisco, Parkinson's Place in Las Vegas, Northwest Parkinson's Foundation in Richland WA and virtually through their HOPE online program. In late 2020 I rejuvenated her voice and narrated her book. It became available as an audio book in 2021. As part of this project I read stories over the airwaves on RadioParkies Australia with DJ Madonna and in Great Britain with DJ Johnny Parky. She and her husband Charlie have two adult sons. They live on a small hobby farm in eastern Oregon. Contact Information: Carol Clupny PO BOX 128, Hermiston, OR 97838 (541) 720-4256

4 thoughts on “Social Media according to NetFlix

  1. Sounds all too real to my relationship with the internet!! I labeled mine a ”love/hate” experience.

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