The Ribbon of Road Ahead

The Ribbon of Road Ahead

One Woman's Remarkable Journey with Parkinson's Disease by CAROL CLUPNY

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  • I wondered what you were thinking when you saw me

      This beautiful Sunday morning was perfect for a bicycle ride.  Charlie and I donned our Evil Knievel bike kits from our Pedaling for Parkinsons/Davis Phinney Foundation team. There is just something about these kits that make us feel like we could defeat the world.  We headed through the park to reach the long, dreaded…

    Carol Clupny, author The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease

    August 19, 2019
    Uncategorized
  • I am Legit

    Around a table at a bar, sitting with strangers, I completely passed myself off as a pediatrician.  Luckily the music was too loud for anyone to hear what I told them about my fictitious practice, and no one asked for my card.  PHEW Why I did that I don’t know.  It seemed fun at the…

    Carol Clupny, author The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease

    August 13, 2019
    Uncategorized
  • A Letter From the Past

        In 2012 my husband Charlie and youngest son Luke then age 13, traveled to France, then Spain to walk the Camino de Santiago.  We were joined by a close friend and family members  (in order of appearance) Jeremy, Allen, Brandon, Yvette, Josh, Cece and Delora.  I came across this piece tonight as I…

    Carol Clupny, author The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease

    August 13, 2019
    Uncategorized
  • Loving My Parkinson’s Self

    Love yourself enough to love others in a way that they feel free, and better for having known you.” Heather Kennedy Loving oneself first is the hardest. It was hard enough to love myself when I had a slim athletic body I could control. When I had a meaningful career helping children learn to communicate…

    Carol Clupny, author The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease

    August 11, 2019
    Uncategorized
  • To “dip” or not to “dip”

    The plans for today changed almost literally by the minute. To “dip” or not to “dip” was the question. “Dipping” the front bike tire in the Mississippi River is a tradition to completing the RAGBRAI. Did we want to ride the last day’s full distance into the headwinds partially retracing yesterday’s route? Did we want…

    Carol Clupny, author The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease

    July 27, 2019
    Uncategorized
  • Notes from the Stoker: What Grows in Umatilla County

    I cannot see directly ahead when I ride behind Charlie on the tandem bike. His broad back blocks the view. I certainly can see what is beside us.  The other day we took a long ride on the backroads and I kept a mental count of what we saw. This is what I wrote when…

    Carol Clupny, author The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease

    July 9, 2019
    Uncategorized
  • Julie Carter

    Julie Carter

    Seating outside for lunch was  limited due to the rain showers.   Attendees at the WPC looked far and wide for places to perch themselves while devouring their bento box lunches.  I had managed a corner of a couch and was merrily munching away when my couch partner got up and moved. “Perfect”, I heard…

    Carol Clupny, author The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease

    June 23, 2019
    Uncategorized
  • Pilgrims with Parkinsons ?

    Yip…. one becomes very open and honest with fellow PWP!! We understand one another!! ~Rose Meynell Bishop, Johannesburg S.A. When I meet a Person with Parkinson’s (PWP) there is an instant feeling of connection. Before long I have shared my diagnosis date, my outward symptoms, medications and how they are working and she has shared…

    Carol Clupny, author The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease

    June 14, 2019
    Uncategorized
  • 32 minutes

    I remember the first national speech pathology convention I attended. It was sponsored by the American Speech and Hearing Association. I was late arriving at the awards luncheon and found an open seat at a table near the front of the conference room. When I was settled and had a chance to look around I…

    Carol Clupny, author The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease

    June 12, 2019
    Uncategorized
  • The Treasure that is Keiko.

    There she was, Keiko, walking towards us as we came out of the grocery store just off the food court at the Nagasaki train station. “Oh you, I wondered if you would come after you asked when we were leaving.” “I had to say a proper good bye.” Charlie and I searched the tables at the…

    Carol Clupny, author The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease

    June 11, 2019
    Uncategorized
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