Who assembled this group?

There are four women staying at this house.  I am 20 years older than the oldest.  Their life experiences reach far beyond mine.   When I first arrived there was a woman from Seattle, a Washington State Patrol Officer.  Merka had most recently lived in Bend.  Gwen called Portland her hometown.  Gwen’s uncle once taught art at Hermiston High and her parents live in Goldendale.  To break up the monotony of  Pacific Northwest Americans there was Alise from Latvia.


Each of these women has had many different careers whereas I had the same employer for 31 years.  They have journied much further in seeking peace iñ their lives…and in fact still search that route daily.  I came to grips with that life journey long ago.  I listened and shared as I can and lifted them up in prayer and thanksgiving.   

Alise had several pages of “questions” for discussion after dinner.  Those around the table went from nearly strangers to close friends as the questions and answers  opened up the stories of our lives.

The State Patrol Officer left in the morning.  Alise, Gwen and I decided to walk to the Costa da Morte to see the lighthouse.  It was a delightful time I will treasure. We walked through the eucalyptus forest and I learned these trees were not it native to Spain.  

The Rio Grande is a lovely river.

  

 When we reached the estuary the white sand beach was covered with millions of tiny scallop shells.  

We took the long way which took us off the highway.  We were tired and stopped to eat at a family owned bar.  After a big meal and 12 km I was ready to call a taxi.  So we went on four wheels the rest of the way.  The lighthouse and coast line were well worth the effort. 


Today we walked a country path to a neighbouring village for groceries.   Then we said our goodbyes to our Latvian.  She insisted on  buying us coffee before she parted with us.  It’s funny how in just a few short days you feel so close, like someone you had gone to school with from first grade on.  She is so alive and so beautiful and fighting so many demons.  She loves lighthouses and the ocean and mapped her course to Lisbon so she could see more. My last words to her were “love yourself”.   It will be quieter around the dinner table tonight but we will all carry memories of these past few days in our hearts.
Carol, Gwen and Merka 

Alise, Gwen and Carol hiking to the lighthouse


Published by Carol Clupny, author The Ribbon of Road Ahead: One Woman's Remarkable Journey with Parkinson's Disease

I am a middle aged woman with Parkinson's Disease. When I was first diagnosed I spent a lot of time researching the disease. Seeing a video of a man in the advanced stages of the disease attempting to get out of his chair and then "freezing" as he tried to walk across the room got me off my butt and moving. Great adventures on the Camino de Santiago and with TEAM Pedaling for Parkinson's across IOWA, as well as the day to day adventures of life have lead me to writing. My first novel, a memoir, was published early 2019. It is called, you got it THE RIBBON OF ROAD AHEAD. Living with the degenerative neurological disease Parkinson's, ULTREIA is a word that guides me. I have chosen it as the name of my business ULTREIA BOOKS. It comes from Latin and old French and means "unfailing courage". In the old days, pilgrims would call "Ultreïa" to each other as encouragement "Go up, go further!" Nowadays we would say "You can do this thing". It takes courage to live with Parkinson's. May I face each day with unfailing courage. Ab Here is more about me; I was living an active lifestyle riding horses, hiking, climbing and snow skiing when at age fifty I was diagnosed with Parkinsons. Retiring from my career as a speech-language pathologist I decided to “take to the road” to battle the disease. My first steps, walking out her door to the mailbox, lead to trekking over 1000 miles of pilgrimage trails on the Camino de Santiago in France and Spain. A dusty bike discovered in the garage resulted in four rides on the Des Moines Register’s Annual Great Bike Ride Across Iowa with the Pedaling for Parkinsons Team. These adventures inspired me to write a memoir The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease. I blogs about my everyday life as a middle-aged woman in the mid-stages of Parkinson’s disease. My honest, humorous, and casual narrative style brings the reader to an intimate understanding of my resilience and acceptance. My blog, sharing the name of my book ”The Ribbon of Road Ahead” can be found at www.ultreiablog.org After completing a Masters of Science in Speech Pathology from Eastern Washington University I received certification in School Leadership and Administration from Lewis and Clark College. I provided speech pathology services and later became a program director completing 32 years in the wide geographic expanse of eastern Oregon. Active in the Oregon Speech-Language and Hearing Association I received honors of the association and the presidential award for work on recruitment and retention of speech and hearing professionals. Il presented numerous papers and projects at local, state and regional professional conferences. I was appointed by Governor Ted Kulongoski to two terms of the Oregon Board of Examiners of Speech Pathology and Audiology, the state’s licensing and consumer protection agency. Since my diagnosis in 2008, I has become active in the Parkinson’s community as an advocate, an Ambassador for the Davis Phinney Foundation and support group facilitator for Parkinson's Resources of Oregon. I was appointed the regional patient representative for the Parkinson's Foundation’s Women with PD TALK study. In September of 2019 the Michael J Fox Foundation selected me to participate in the Parkinson’s Policy Forum in Washington DC. As an attendee at the World Parkinson Congress in 2016 in Portand, Oregon, I presnted a poster session examining the decision making process for patients considering deep brain stimulation. At the 2019 WPC in Kyoto, Japan I presented a poster on vision concerns of women with PD and lead small group discussions. Myr book The Ribbon of Road Ahead has provided many speaking opportunities for Carol. In 2019 and early 2020 she visited 24 support groups in Washington, Idaho, Oregon and California to share her thoughts on living well with the disease. In addition, she has presented talks for The Center on Aging in San Francisco, Parkinson's Place in Las Vegas, Northwest Parkinson's Foundation in Richland WA and virtually through their HOPE online program. In late 2020 I rejuvenated her voice and narrated her book. It became available as an audio book in 2021. As part of this project I read stories over the airwaves on RadioParkies Australia with DJ Madonna and in Great Britain with DJ Johnny Parky. She and her husband Charlie have two adult sons. They live on a small hobby farm in eastern Oregon. Contact Information: Carol Clupny PO BOX 128, Hermiston, OR 97838 caclupny@gmail.com (541) 720-4256

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