The Ribbon of Road Ahead

The Ribbon of Road Ahead

One Woman's Remarkable Journey with Parkinson's Disease by CAROL CLUPNY

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  • Countdown to DBS 15 days to go

    Today I overheard my husband tell a friend  that I am anxious and nervous about the DBS surgery only 15 days away.      I wish I could say I was anxious, nervous, excited or scared…or any emotional feeling at all.       Actually I only feel physical sensations.  Tremoring hands, inner tremors throughout my body,…

    Carol Clupny, author The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease

    March 8, 2016
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  • Countdown to DBS 17days "You Don’t Look Like You Have Parkinson’s"

    My friend Mike  has been acutely ill for a number of years.  I cannot even begin to list the illnesses his body has thrown at him.  Last Saturday we discovered we were going to be in the same place, and it was not either of our home towns.  So knowing that the playing field was…

    Carol Clupny, author The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease

    March 7, 2016
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  • March 7 facebook postt

    These days continue to fly. I woke up to the light just breaking the horizon. Before the chime of 6 am. I am proud to say I did my spine strengthening exercises, stretches for that darn sciatica and stretched those tight hamstrings. Some morning meds were delivered by the ever vigilant and loving care partner…

    Carol Clupny, author The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease

    March 2, 2016
    Uncategorized
  • DBS Countdown Day 23 ooh Time is flying!

    DBS Countdown Day 23 ooh Time is flying! I woke up at 1 am with THE MOST terrible headache and feeling quite ill. I am not prone to headaches so I knew this could not be good. ME and my blankie nested in the bathroom near the porcelain throne, feeling the cotton mouth of impending…

    Carol Clupny, author The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease

    February 29, 2016
    Uncategorized
  • Countdown to DBS day 25 motivation

    February 25Recently I have been dealing with a great deal of pain.  I have had the usual PD pain, but its been complicated by sciatica.  So pour on the physical therapy from a very gifted clinician, have weekly therapeutic massage from the best around, work with a knowledgeable and observant personal trainer and stretch and…

    Carol Clupny, author The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease

    February 26, 2016
    Uncategorized
  • Countdown to DBS DAY 27 Troublesome Daytime Sleepiness

    Countdown to DBS DAY 27 Troublesome Daytime SleepinessYesterday I got on the “SLEEP” soapbox so today is Part 2 of the article from the Parkinson’s Foundation. This information applies to many people so don’t think its only for PWP.Excessive sleepiness during the day may be a symptom of PD and may even start before the…

    Carol Clupny, author The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease

    February 25, 2016
    Uncategorized
  • Countdown to DBS Day 29

    Countdown to DBSDay 29It’s perfectly normal for me to be messing with my cell phone…But our on the Meseta in Northern Spain? Was I trying to act ok? Did I do a good job of convincing you all?I got in the car and drove to the high school. I parked my car in the first…

    Carol Clupny, author The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease

    February 23, 2016
    Uncategorized
  • Wednesday Night at the Prison

    February 17         As I look at this picture I remember how very sacred that moment was.  I held in my hand 3 heart shaped rocks for the three men I love the most in this world;  Charlie, Loren and Luke.  I carried those rocks with me from home, and left them…

    Carol Clupny, author The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease

    February 18, 2016
    Uncategorized
  • Feb 12, playing music

    I was honored to play along with Anne and her sidekick. One strategy I have used the last several months to keep my sanity while waiting for the Deep Brain Stimulation Surgery is to play the guitar. I signed up for lessons with Mike Kellison who is super patient with me and yet offers challenging…

    Carol Clupny, author The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease

    February 12, 2016
    Uncategorized
  • the new do

    Busy afternoon as I drove quickly from Cut Loose Salon (where Diane did her magic) to physical therapy. The haircut looks like me several years ago. Maybe it can be my ticket to time travel! And tonight I walked out of the physical therapy office and stopped in my tracks. The pain was gone! Michael…

    Carol Clupny, author The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease

    February 10, 2016
    Uncategorized
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